Rosenau Family Research Foundation

August's Featured Investigator

Chris Lee, PhD, was awarded a $375,000 Rosenau Family Research Foundation grant in 2025 for his project titled “Molecular characterization and pathogenicity assessment of common variants of uncertain significance in Krabbe Disease”, which is studying whether measuring GALC enzyme activity and levels of the toxic substance called psychosine in cells can help determine whether certain genetic changes cause the disease.

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2025 Annual Report

The 2025 Annual Report reflects the continued commitment of Rosenau Family Research Foundation (RFRF) to improving the lives of individuals and families impacted by Krabbe disease and Cystic Fibrosis through research funding and advocacy.

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Announcing: 2025 Grant Recipients

Congratulations to:
Hara Levy, MD, MMSc - University of Wisconsin, Madison
Chris Lee, PhD - Biomedical Research Institute of New Jersey
Natalia Gomez-Ospina, MD, PhD - Stanford University
Changfan Lin - Caltech
Venkata Sai Chaluvadi - University of Pennsylvania
Tom Brett, PhD - Washington University in Saint Louis
Robert Thompson Stone, MD - University of Rochester

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RFRF is seeking candidates to fill additional roles on our Board of Directors

We are looking for a wide range of expertise to complement the knowledge of our current Board. Our Board members play a crucial role in the functioning of our organization, and ensuring that we are serving our grantees and the rare disease community in the most efficient, empowered way possible.

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A Word from Our Co-founder

Watch the video to learn more about how Rosenau Research Foundation came to be.

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Our Research Focus

Krabbe Disease

Krabbe disease is a severe, inherited, neurological condition. It is part of a group of disorders known as leukodystrophies, which result from the loss of myelin in the nervous system.

Learn More About Krabbe Disease

Cystic Fibrosis

Cystic Fibrosis is a severe genetic disease that causes lung infections and limits the ability to breathe over time and can keep the body from absorbing food.

Learn More About Cystic Fibrosis