The Krabbe Translational Research Network (KTRN) meeting will celebrate its 10th collaborative gathering March 2022.  The KTRN meeting, organized by The Legacy of Angels Foundation, will meet at the Sheraton Sand Key Resort, located on the sunny shores of Clearwater, Florida, from March 16th through March 18th, 2022.  The goal of this disease-specific meeting exists to collectively bring researchers, clinicians, pharmaceutical companies, and most importantly, families impacted by Krabbe disease together. 

The KTRN meeting agenda is driven by a steering committee with expertise in biology, chemistry, physics, gene therapy, newborn screening, and related technologies.  The committee will work diligently to ensure the agenda allows for a robust exchange of ideas, supports the examination of important research, and presents partnership opportunities. We invite you to take a moment to review the additional information provided in the flyer and premlinary agenda prior to registering for this special meeting.  Registration is available here for in-person and virtual attendees.  Please note, speakers and panel participants should not utilize this link.  The Legacy of Angels Foundation will send speaker and panel paticipants a unique registration link.

COVID-19 Protocol:

Amidst the pandemic, we’ve missed the value of in-person meetings.  To help us all gather safely together this year, TLOAF has developed a health and safety policy for the wellbeing of all attendees.  By attending the meeting in-person, you acknowledge you have read the full policy here, and you are confirming that you:

  • Are fully vaccinated or have received a negative PCR or antigen COVID-19 test within 72 hours of picking up your registration materials at the conference venue.
  • Are not experiencing any symptoms of COVID-19 identified by the Centers for Disease Control and Prevention at CDC.gov.
  • Are not under any self-quarantine orders.
  • Acknowledge and will abide by all federal, state, and local regulations and health and safety protocols.

Should you have additional question, please reach out to us by email at info@rosenaufoundation.org.